To look at me, one would never realize that I have this disorder...Kartagener Syndrome. It is an internal process so it is only announced by an external application such as wearing oxygen tubing to provide the level of oxygen your body needs to function properly. Since I do not wish to type out the definition and description of this disorder, I am providing the link to the Wikipedia version which will give you a little insight. http://en.wikipedia.org/wiki/Primary_ciliary_dyskinesia
Assuming you visited the link, did you learn anything? :) My main reason for letting my readers know about this personal, and up until now concealable disorder is that I am at the stage where I can not hide my physical ailment any longer. This past Thursday I went for pulmonary function testing and then paid a visit to my pulmonary doctor. The outcome was not a good one and so now I am breathing in mechanically produced oxygen through a tube that goes into my nose.....24/7......I HATE IT!!!!!!
I didn't mind, and even accepted this disorder as just a part of my life. My mother has told me that I have always had a positive outlook, even as a child, which got me through a lot because I was a sickly baby, going through many surgeries and procedures before the age of six. This disorder went undefined until I hit 40, seven years ago. Since then it has steadily gotten worse. It has progressed really only because I have not had the proper medical insurance or none at all and that meant I could ill afford the treatments conducive to keeping this disease at bay. So, here I am with this NOT so pretty accessory attached to my face, like a big north star blemish, and a tank (although be it small) hanging to my side via shoulder strap. How inviting for casual conversation with handsome strangers! Yes, my worst fear is that I will die alone because no one wants to be involved with someone who's mortality may be shortened. Should I even be thinking about this?
Sometimes my positive outlook takes an inward nosedive to bitterness in the land of "why me?" Sometimes I think this is the reason I have a low tolerance for whiny people and people who have everything and yet still complain how awful their lives seem to be compared to the rest of the population. Maybe it's just my attitude.........period. I am not certain of all my thoughts and feelings but I deal with them on a daily basis and decipher them as needed.
I will deal with this newest ordeal and return to the "normal" me shortly.......................I think.......hmmmmmm. :)
ANGELO DE GIOIA